The Arc Minnesota “promotes and protects the human rights of people with intellectual and developmental disabilities, actively supporting them and their families in a lifetime of full inclusion and participation in their communities.”
PACER Center enhances the quality of life and expands opportunities for people with disabilities and their families to help them reach their highest potential.
LDA provides support to people with learning disabilities, as well as parents, teachers and other professionals, with cutting edge information on learning disabilities, practical solutions, and a comprehensive network of resources.
Patient Advocate Foundation is a national non-profit which provides professional case management services to Americans with chronic, life threatening and debilitating illnesses.
NF Camp is the annual summer camp of the Children’s Tumor Foundation for teens and young adults living with NF. The camp takes place every year on the third or fourth week of July in Salt Lake City, Utah.
The official US government site for Medicare.
An agency of the U.S. Department of Health and Human Services, NIH researchers are “working to identify signaling pathways in the nervous system, with the hope of eventually developing drugs and techniques to help diagnose and treat NF.” The website contains multiple articles and links with more information on NF.
If you or a dependent has neurofibromatosis (NF), you may qualify for Social Security disability benefits. While the Social Security Administration does not list the condition, they will consider many of the symptoms typically suffered by those with neurofibromatosis in determining eligibility.
An informational website that provides answers on how to apply for disability, how to appeal a claim in the event of a denial, how to navigate the federal system, and how to avoid certain mistakes that are commonly made by applicants.
NF Upper Midwest provides financial assistance for people with NF living in Minnesota, North Dakota, or South Dakota, to assist with issues or emergencies related to the diagnosis.
Angel Flight Central is a volunteer non-profit serving in need by arranging flights for health care or other humanitarian purposes. They service the entire Upper Midwest.
LifeLine Pilots facilitates free transportation in Minnesota and the Dakotas for medical needs such as on-going treatments, diagnosis and follow-up care.
The Patient Travel Referral program, a program of Mercy Medical Angels, “provides information about all forms of charitable, long-distance medically-related transportation and provides referrals to all appropriate sources of help available in the national charitable medical transportation network.”