NF affects over two million people worldwide.

Neurofibromatosis (NF) is a progressive genetic disorder that causes tumors to grow on the coverings of the nerves. The effects of NF are unpredictable and the symptoms have varying degrees of severity. NF is one of the most common genetic disorders, affecting one in every 2,500 births and affecting more than 100,000 people in the United States and 2 million people worldwide.

More people suffer from NF than Muscular Dystrophy,
Tay-Sachs and Huntington’s Disease combined.

National Institutes of Health

Our mission is to serve our NF community through support, education, and awareness.

NF Upper Midwest is dedicated to supporting NF communities in Minnesota and the Dakotas by raising awareness, and providing education and support for those affected by neurofibromatosis. Through grants, community events, education forums and advocacy, our goal is to strengthen our NF community and increase awareness about neurofibromatosis.

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