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awareness





Click here to read more on how NF UM  supports securing research funding through advocacy efforts.


education



There are many resources available to learn more about neurofibromatosis. Here are links to some that we recommend:
» info for individuals and families
» info for healthcare professionals

what is NF?



Neurofibromatosis (NF) is a neurocutaneous syndrome that can affect many parts of the body, including the brain, spinal cord, nerves, skin, and other body systems.

» keep reading...

news

Charity partnership with Southwest Metro Mustang Club
We are honored to have been chosen as the charity partner for the Southwest Metro Mustang Club (SWMMC)!   For their charity partners, the SWMMC is committed to providing awareness and volunteerism through events and club activities. Thank you to SWMMC for choosing NF Upper Midwest!  www.southwestmetromustangclub.com

Mark your calendar for the 2015 Step Up for NF walk!
We are excited to announce that the 2015 Step Up for NF walk will be on Saturday, June 20, 2015 at Como Park! 

Study Opportunity Available
Participate in a study of social-emotional development in neurofibromatosis type 1 conducted by the University of Minnesota.  Click here for more details, including study contact information!


you can get involved


There are so many ways to help create more awareness, education and support for those affected by neurofibromatosis. You can make a difference!

» make a donation
» join us
» get involved
» learn about grants


CONTACT: 1430 Concordia Avenue, #40241, Saint Paul, MN 55104 | (651) 204-0067   Send us an email

 
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