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awareness





Click here to read more on how NF UM  supports securing research funding through advocacy efforts.


education



There are many resources available to learn more about neurofibromatosis. Here are links to some that we recommend:
» info for individuals and families
» info for healthcare professionals

what is NF?



Neurofibromatosis (NF) is a neurocutaneous syndrome that can affect many parts of the body, including the brain, spinal cord, nerves, skin, and other body systems.

» keep reading...

news
Participants Needed for NF1 Survey

NF researchers need your help! If your child has NF1 and a plexiform neurofibroma please participate in a 30 minute online survey. The purpose of this study is to understand the health-related quality of life of individuals with NF-1 associated plexiform neurofibromas and to learn about their experiences. Participants will receive a $25 Visa gift card!

The pediatric survey can be accessed at the link below:

https://www.assessmentcenter.net/ac1/Assessments/pNF1_pedsR

you can get involved


There are so many ways to help create more awareness, education and support for those affected by neurofibromatosis. You can make a difference!

» make a donation
» join us
» get involved
» learn about grants


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